I have not wrote in my blog for a very long time. Almost a year to be exact.
I had a very difficult journey the last year. And to tell you the truth it has been brutal.
If you haven’t read my experience last April and would like to read here.
I was an incredibly long journey. One that I never wish to go through again.
I had to relearn to walk again. I could barely do anything a human being does.
I was sent home without a chair for my shower. I literally had to sit on my shower floor and struggle up grabbing onto shower handles to even get up.
I taught my child how to cross the street to catch the school bus for grade one. I was rendered so useless I could not even do that.
I had to put my blog on hold as I was unable to just run out and fix my MacBook that broke down a week after I was home from the hospital in order to write and thus I put everything on hold.
I am not sure if my blog will help anybody in there journey to auto immune diagnosis and the hell it entails, but I will continue to write. And along the way I might be able to help people that may get a blood clot as well.
I since last year have been diagnosed with protein S deficiency. And in total I had well over a dozen blood clots in my arteries.
As you may know if you did read my last post, the ER physicians sent me home with crutches and narcotics as a treatment and refused to properly check me or find my arterial blood clots.
I was in so much pain for days until the next ER found them. And they also ignored me until the panic hit when my ct-scan was done. Then they took me seriously, after laying in an ER room over night with no-one caring to take me seriously or help my pain.
I forced myself to walk step by step. And I did not have a walker. By the time I got home I missed the delivery. I said screw it and thought I would walk faster without it.
I have to tell you, sometime after that I regretted my decision to not fight to get it eventually.
But to tell you the truth I hate people in this nation I am in, and try to avoid them at al costs. They re some of the most horrendous people I have ever had to encounter in my life. Having one of them on my doorstep was not really something I wanted.
I did end up walking and standing long enough that I could cook for my son for the first time 7 months later. I still struggled for endurance after and am still slow one year after.
My child suffered immensely because we could not do activities that are normal for most parents. It was bad before, but after surgery most things were impossible.
And now when I feel I am starting to get hope, covid19 is keeping us all indoors.
I guess it will spare me from sitting down often while walking in the park with my child, and gives me a little more time to heal for when I can grocery shop easier without ordering online.
To me my days really haven’t changed as I got out rarely because of health.
My hashimotos turned to graves disease and the blood pressure from it may have pushed my blood clots into existence.
I guess graves disease is not a good things to have if you have a genetic blood clotting disorder.
I am hoping by summer we can all go outside, and that I can play in the park with my boy.
After about a cometh after my surgery I struggled to get to a rheumatologist, and she had the nerve to tell me to go work out at least twenty minutes a day. She blamed another diagnosis and said it was fibromyalgia that I needed exercise.
I asked her if my molar rash, joint, pain, broken lumpy hair, and ulcers were symptoms of fibromyalgia, and she said no. “But you need to work out.”
I explained that I just recovered from over a dozen blood clots in my arteries.
She proceeded to put her elbows on her knees, tilt her head, and give me a look of “You are in idiot” and told me I ha to work out.
I told her you don’t tell. a matrons that wa a martial artist voluntarily to go work out.
I left the office disappointment I struggled to even get to her with every once of my strength.
I have since found a lawyer who wants to sue. I now need to come up with five thousand for a physician expert witness, who will comb through my medical files. Everything else is on the pay after we win type deal.
I am not sure if anyone even reads this blog. But if anyone is willing to help me get through this lawsuit and willing to help me get the money I need to hire the expert I am willing to beg for help and donations.
The money after the lawsuit will get my the care I need in the USA and I will move back home and get out of this horrendous place I got stuck in.
I’m not sure why I have been harmed so long, or why doctors didn’t even care if I could board my plane home or barely even walk for so long.
In my next post I am going to write about how I felt as my blood clots turned into full occlusions.The symptoms and that they do not always have the same signs as commonly described by many blogs and physicians.
If you know anyone that is at risk for blood clots, or struggling with autoimmune diagnosis feel free to hand them my site.
Maybe they will get some answers, or feel at the very least that they are not alone in their journey to answers.
If anyone would like to donate to me in order to change laws, pay my expert for court purposes and eventually get home if there is extra, here is my very empty bitcoin address. I would be beyond grateful.