If you’re like me you might be looking for more information on correct dosage for LDN( low dose naltrexone) because you are about to go ask, convince, or beg your doctor if you have to, to get a chance to try it.
Coming from experience of big fat “NO’s” from doctors for everything including listening to me as a patient trying to get a proper diagnosis and to be taken seriously, I was a little skeptical and jaded expecting just that from my doctor when I asked.
Although this particular doctor is really good. She keeps on the behinds of rheumatologists that ignore me because they can.
She gets quite frustrated and roll her eyes with disgust when reading patient notes and hearing about my appointments because they were ignoring me and letting me suffer.
She truly is a doctor that does it because it was a choice to help people vs just a title and good pay.
Anyway, I wanted to know as much as I could about it before just in case they said yes but didn’t know what doing to start at. I really didn’t expect a yes but I still wanted as much information in my defence arsenal just in case I could convince them.
So I’ll share with you what I learned and what I did and at what dosage it started to work for me.
There was quite a bit of information out there from patients that use it. Some stated to start at 0.5 mg all the way up to 1.5mg. And the highest dosage after gradually adding more was 5mg by only one person sharing out there. But the standard in the medical industry is 4.5mg.
Then I thought what if I can get my hands on it but my doctor doesn’t know about it but is willing. I was kind of worried about reactions because my body is very sensitive to a lot of medications and not so much to others.
I figured it wouldn’t hurt to start at 0.5 and move up avoiding any unexpected issues it would just take a little longer to get to a dosage that would seem to help the symptoms I suffered from.
I then called a compounding pharmacy and asked if they had anyone there using LDN. Good start because they said yes. I would call them back and ask the prescribing doctors of it if my doctor said no.
So I took what I knew and booked an appointment with my doctor and waited patiently for a miracle and hoped for a yes.
I had plenty of time to panic about getting the dreaded no I can’t do that…
My appointment day came and I really started to panic. I thought this might be a miracle for me. And I was so done with suffering.
I told my doctor expecting to have to explain and cajole, beg, and share facts I found in my research.
I even had screenshots of facts from reputable medical establishments that shared knowledge and possibilities for the future of this drug. What id did and how. The side effects…
When she walked into the room I was waiting in she asked me what she could do for me. She is very aware of how much I suffer and been very hands on as a doctor. But she is also strict with certain things so the nervousness kicked in.
When I told her I was done suffering and I hoped she could write me a prescription to help me that was not very mainstream but I had all the facts with me if she needed to see them before making a decision.
“I don’t knooww, what medication is it?” I was really paranoid then because she had that tone of I’m not trying anything that could be dangerous the tone.
Here is where I almost fell out of my seat.
She said “Oh yes, sure no problem, what dose do you think we should start you at?”
I could have cried from such relief at that point. Shocked actually. She also knew I was always worried about how my body would react so we decided to start low go high.
She wasn’t too familiar with dosing either because it’s not too commonly used. But who cares I got my hands on it!
I don’t think I have ever walked out of a doctors office so happy. Maybe now I could get better.
I went to pick it up after being filled. One of the pharmacists wanted to speak to me when she gave it to me. We went back into the office so I could get out of the migraine causing sun.
She explained I could take it starting at 1.5mg and that she told my doctor it would be OK to start at that dose. And she also told me I could up the dose to 3mg in a week to two weeks. And so on.
She explained she was on it herself for an autoimmune disease and that it worked excellent for her and she is back to normal life and so grateful for it.
So both my doctor and I agreed to that starting dose and I could always split the pill to lower dosage if necessary.
She also mentioned to me that auto immune patients are known to be low in zinc in most cases. So we spoke of that and other shortages I was aware of and trying to supplement via supplements.
She pulled out a bottle of liquid something or other and brought our a disposable spoon and said “Here, try this”
I did, and she asked me how it tasted. I said there really wasn’t any taste maybe just a little blah stale taste but nothing really stand out.
She told me, “iI you had enough Zinc you would have spit that on the floor.”
If you think you are low on zinc yourself try this. A zinc taste test.
So I knew I was zinc deficient without a doubt and I had contemplated starting to take zinc and copper before but this settled it for me. She told me even better with copper.
And there is my experience with getting my hands on LDN and what the average starting dosage was and how to gradually move up.
So just to put it all together for those reading this article. My pills were made in 1.5mg tablets. So I could easily add a tablet. Not getting too much that my system could not handle it.
After one week I had no bad side effects I added a 1.5mg tablet and my body could not take it. I tried again on the second week and my body had no problem taking a 3mg dose. Then up to 4.5mg three weeks later.
On one last note for those researching, I also read that the longer patients waited before upping the dosage, the harder it was to successfully get to the full 4.5mg dosage.
I hope this info and my personal experience helped. If you are worried but really want to try LDN because you just want the misery to go away, just talk to the doctor that does agree to write you an RX. And you can both decide together whats best for you. And remember you can always split your tablets if necessary to lower a dose to make it more tolerable if your body is super sensitive.
As one of the pharmacists told me no worries you can always open a tablet and lower the dose if necessary. It’s not rocket science and you don’t have to be exactly precise at these doses.
Coming in a future article I will write about the side effects and what happens if you accidentally take two doses. <——-In the mean time don’t double dose.