Do you have a lump in your vaginal wall? Do you have a bartholin cyst? Or is it even a bartholin cyst?
Do you have lumps in your vagina? Pelvic pain? Intense pain? Maybe even a lump in area of gland that can get bartholin cyst?
Here is my experience.
I have read that some women thought it was just a bartholin cyst and found it to be cancer. As a matter of fact I read an article about it when I was trying to find what my lumps in vaginal wall were.
I honestly din’t think they were cancer, but my bartholin cyst was way too small to cause me such pain and the extra lumps in my vagina were not normal. I was correct they were not cancer but they were very dangerous.
I have to right a disclaimer here and state I am not in the medical profession, and I only know certain things from experience. In my case bad experience.
So… I’m not going to write this to panic anyone. Only for those who have other lumps along with what they may think bartholin cyst. And seems odd to have more pain than normal for those who have experienced one before and are aware of how they normally feel.
And they get pretty darned painful. Mine in this incident that was not bartholin cyst was way more than pressure just in that area. It was intense deep throbbing pain in entire area.
Just to clear up some panic for those that researching their bartholin cyst issue. My pain was intense like labor pain continual but in area of cyst and back vaginal wall. I mean INTENSE labor pain feeling not going away in contractions type pain.
I wish it was just a bartholin cyst pain. Not that I am underestimating your pain with B. Cyst. Those are just one side, hard to sit if larger and an otherwise pain to deal with.
I learned a lot from my experience in my severe pain and I want to share with those who need the informations but have not come across this information and are in tremendous pain like I was.
And I have to warn you… This is SO rare. I mean really rare. REALLY rare. So don’t go panicking unless in tremendous agony that is not consistent with a bartolin cyst.
I might be one in a few billion.Talk about bad luck. But I had I had blood clots and kinked iliac arteries.
I had symptoms of the kinks for years before my major blood clotting event. And they probably helped causes them and make my situation worse when I did have blood clots.
I’m even willing to share my medical records with physicians who are interested in these types cases. (You’ll have to verify your credentials as I am not handing my files to anyone not working in medicine as physician verified.)
Anyways, I am not trying to cause a huge panic over what is a minor, yet painful experience in the form of a bartholin cyst. I had one years ago. It is a faint memory though the pain was annoying and uncomfortable to sit normally. It was huge and also not infected.
And it progressed to full occlusions because it was not caught and bartholin was the diagnosis basically. Even though I requested ultrasound because I know my pain threshold and what’s normal in bartholin cyst.
BArtolin was NOT as severe as what I was going through in this case.
Just before I had surgery I thought I had what was a bartholin cyst. I did nothing as it to me was, “just a bartholin cyst.”
Time went on and pain was becoming worse. I visited my GP. And GP let me know not infected. I went on my merry way happy with the feedback and not a concern just really uncomfortable it was just a bartholin.
Who would think anything else at the time? No one not even me.
I did the sit bath treatments as normal but I was in severe pain quickly over that day and got worse fast, and getting worse as time progressed. The cyst isself was not big and was odd shaped. like a peanut.
I could no longer live in the pain I was in and I did what we women are not supposed to do. I tried to squeeze to pop this sucker myself!
I know I know not good. But it was not infected! And I was in severe pain radiating in entire pelvic area.
Called GP back and explained I could no longer survive the pain. I was told go into ER. It was not infected though it should not be that painful. I don’t think I told my GP about lumps I found in back of Vaginal wall.
But I was told to go into ER and also mentioned my lumps on vaginal wall.
The ER physician just referred to Gynecologist and didn’t think serious.
I did ask about ultrasound because it was intense, and to me too small for that much pain. Ultrasound was shrugged off. I was disappointed but left, what am I going to do when a physician isn’t concerned?
I’m not about to have a temper tantrum in an ER room. It’s just not me and what are you supposed to do about something that seems like bartholin cyst if not including pain as I was?
Not to be too graphic, I also had hemorrhoids from hell then, and I couldn’t figure out why they were so painful.
I got during pregnancy also, and never thought odd as pregnant. The pain I had from them was brutal though, and I did think that was odd. Pregnant or not.
I also could barely walk when pregnant and at times before. I felt weak, got breathless easier and had a lot of discomfort deep in my groin area.
I had mentioned it while pregnant and of course I was ignored. It’s just the status quo where I am.
When I was pregnant I could hardly think. I had confusion and an inability to think properly. I had pain in. my groin and felt I could hardly stand. Weakness would not go away.
I literally told doctors I felt I could not hold my torso up and that my body was just going to cave in. I asked for help.
Got none of that. NOPE!
That groin pain never went away, though sometimes were worse than others, and was ignored by ALL physicians, including a low blood pressure of 60/30. Yet I was sent home and dismissed even though a nurse couldn’t figure out why I was still standing at one of my regular OBGYN checkups.
You might ask why my pregnancy issues were important. But hold on they are and were!
I finally know what was wrong with me and why I had the groin pain, and what I called, “cognitive abilities were lessening.” To which I got a trusty eye roll.
Hey, I didn’t get my vocabulary from google and I know my mental acuity under my normal conditions. So it was a worry to me!
To me pain deep inside my groin area should be of concern to an MD I would think, especially if pregnant.
I wish I had my current GP then. But I didn’t.
Again I have to remind myself, I live in a horrendous area. So I cannot compare apples and oranges or a pinto a Lamborghini (other nations medical professionals compared to the one I’m in). On average except a few physicians that are really good, this is my best analogy.
Anyways, I headed home from ER. Things just got worse. I started to have a harder time to walk. My hips seemed to grind each step as I got closer to my car.
Didn’t head back to ER because I was just sent away. Figured I would be literally kicked out if back. Sigh
Got to my gynecologist a few days later and they were not concerned either. The good news was I had an ulcer coming at same day of my visit.
I know who gets happy about an ulcer on labia right? Me because I needed a physician in this part of world to see that I am not making these symptoms up. My Gp Believes me but rheumatologist don’t
Got verification that it looked like Behcet’s disease ulcer. I know questions the timing… I’m pretty sure they are tied together. As my mouth ulcers are too.
Now it’s on the medical record here. Which I needed. Md’s would know why.
What was the problem and the extra lumps, along with that odd shaped peanut shaped bartholin cyst?
I was right. Small “bartholin cyst” should not have caused me that much pain.
But it did!
And the reason for my groin pain while pregnant, including severe hemorrhoids, including with this cyst?
I had kinked iliac arteries! I am now 100% positive this was reason for groin pain, weakness etc while carrying my baby. It got worse as the baby was getting bigger as well.
I would think pressure from baby weight and where my uterus sits.
I also had a bunch of blood clots. For those who have not read my experience, I had a large broken clot in my stomach aorta, a bunch in my pelvis including iliac artery, and more yet in both legs, including full occlusions.
As soon as I woke from my embolectomy, I was feeling down there to see if it was gone. Sure enough it was. The surgeon that rescued me told me it was not a bartholin cyst.
I was worried until I realized it wasn’t bad news but good they were indeed not bartholin cyst and gone with surgery.
That must have taken hours and hours as it was boring when I was transported to a surgeon, by ambulance to a different hospital.
(I had another ER visit where I was sent home unable to walk with crutches. But that is in previous post. I will spare my readers that visit here. feel free to go back if you want. The experience was terrible and abusive to say the least.)
It is so important for physicians to listen and take their patients seriously. I can say though until I came to the nation I am in, I had never experienced speaking to walls in Md offices like I do and have here.
Though I have had physicians in several different nations none compare to the situations I have dealt with my current longitude and latitude.
I have my theories as to why it is. But that is another day another beast to slay which I am not wanting to cover today or anytime soon.
Unfortunately it’s the norm here.
But if you have similar symptoms as a patient, and you know your body and what type of pain you are able to handle, and this is far worse I urge you, to “urge” your physicians to look into it a little deeper.
.I am frustrated the ER was not willing to look into it further that day. It could have spared me full occlusions and further prolonged suffering.
The surgeon explain they were going to remove all the clots mentioned ballon and possible bypass, which ended up not having to be bypass. That surgeon also believed me when they asked me if I had a history of this. I said I thought this was the problem unresolved doing pregnancy that caused groin pain.
It turned out that groin pain I had before and worse during pregnancy was kinked iliac arteries! Which would explain why I was winded and stamina and endurance went downhill.
The same way I felt and explained apparently is how other patients explain it to their physicians. Only difference is I am where I am and it is very disrespectful here.
Many MD’s assume everyone is no good and assume they are all faking and alike I have seen since the beginning since I first arrived.
I am tired of being disregarded by them because of their burnout and disbelief patients actually can have medical cal crisis’s in their offices and ER rooms. Not to mention their is no accountability so who cares.
I’m Grateful I was believed by my surgeon when she asked history and I explained it answered pregnancy issues and difficulties I sought answers for. It was in the notes that I had possible issues with this in past. It could have been left out.
I after a long recovery journey to get my strength to walk longer distances aside from bathroom was a huge task for me without physiotherapy.
But My groin pain was gone immediately after surgery. And I have yet to have it back in such a serious manner. I now feel I can hold my body up again without using all my strength to do so.
Maybe if my groin pain wasn’t ignored when pregnant, and all my serious health issues were treated properly I would have not got stuck here nor had this event.
I just went from bad to worse during and after my pregnancy. I did not want to be a burden to those who would have taken the brunt of my health/finacial issues. And I ended up on disability where I am.
I am hoping to get back home soon since I did not stay her by choice if I was healthy and able to bored plane pregnant. That too is an entire different post…
I was tested for protein S deficiency and was positive. I am now retesting s one physicians thinks it may only be there because I was tested close to my event.
I have a hematologist now who seems very on the ball and wants to retest me since I was tested in hospital. They say it would generally come back positive if close to an event vs taking test down road.
I should be doing that and coming off meds soon to retest. One theory was my fib may have shot the clots. (I have graves disease which was after opposite problem of the hash’s for years.
Talk about a hot mess!
So long moral of this story? Don’t dismiss lumps that don’t belong in vagina’s that come with severe pain! Both patient and physicians.
Don’t dismiss groin pain deep inside that winds you and causes you to feel you can’t hold your body up. I have my theories of how they came to be. you can ask me in comments if you like.
I am hoping to nail rest of diagnosis to get back to my career so I can get back to the place I found and call home in the latin americas.
Where I hope I can get back to my stress free happy life I found there. I am now one huge step closer.
I am still in process of redacting MD names etc from CT scans and will post those for anyone to see.
I’d love comments from anyone who has gone through this themselves. Or those in medicine who have dealt with it and what they would have done differently.
I personally tried to be as clear as a human could be when in ER rooms. At first I thought Bartolin cyst and not understanding why the tremendous pain. And I wouldn’t not in million years tie my years long groin pain to them thus didn’t[t bring it up.
Only that I was having issues getting diagnosis for proper health issues regarding autoimmune.
Though I can say I doubt I will actually get an ethical rheumatologist that isn’t lazy, nor wants to look into other health factors, and prove incorrect in other arenas of my health since most logical option. Not here in this nation I’m in anyway…
So yes.. If you are pregnant and feel groin pain and it gets worse as baby grows and you are winded beyond a pregnant belly taking up lung room and feel your torso going to falll off…
Ask to look at your arteries and such in iliac area. Add those types of lumps and severe pain. Don’t wait.
Now over a year later I am finally starting to have strength back to levels I can call myself “proud of myself.” After my embolectomy I could barely walk two steps, then tens steps. I had zero help, zero physiotherapy, no shower chair so sat on shower floor.
I am still angry but I can write this now in different perspective hopefully helping someone who may have their own questions unanswered.