Updated for grammatical errors March 28, 2020
Are you looking around Dr. Google to see if you might have a blood clot?
Are you afraid you have one? Do you have cramping in your leg or arm right now?
Well, first don’t count me as medical advice. I am also not trying to scare people who don’t have one!
I will give you a list of symptoms and then my experience of what I felt.
If you are worried that you have one or that you may be at risk for them, I hope my experience can help you.
I will share the good, the bad, and the disgusting. Keep in mind I am a woman and my symptoms in certain areas may not be like yours.
There are several things that can cause cramping.
A few are working out, blood clots, dehydration and even certain mineral deficiencies. Keep in mind athletic people can get blood clots as well.
I used to be very athletic before undiagnosed autoimmune took over.
Medical sites say…
- Cramp deep in muscle like a deep ache
- Redness in area of cramp
- Warm to the touch
- Swelling in area
Many articles do not tell you the whole list of symptoms or how they may vary.
The next list that is not very popular are,
- Pale in area of the clot
- cool to the touch
- atrophy or contracted limb where clot is
If you want to read my whole story from beginning to end, how it felt beginning to end, even before I knew what was gong on, read on.
If you want to read what I went through in the ER room read this post.
It was written before I knew about my protein s deficiency and when I was getting closer to a diagnosis of Bechet’s disease.
Right after I had my major embolectomy.
And if you are wondering, yes doctors can miss them. I had ER staff send me home with orders to get physio therapy, even though my test were conclusive for blood clots.
I don’t really think they read my blood work. If they had, it would have been very obvious.
I personally think that my strength as a human being was taken advantage of. And they assumed I was faking my pain, and they wanted to clear up a bed in their ER room, ignoring my lab work.
I hope that anyone reading this never has to go through the agony I did.
I happen to live in a nation with horrendous healthcare.
Doctors in many cases do not like to work only collect their pay. If you live in civilization you will probably have better luck.
If you know your body and it is bad enough for an ER visit, advocate for yourself if necessary. Although I did I was still ignored.
I am not saying be a hypochondriac, but if you are thinking it is a blood clot and know your body, and are sure it’s serious, don’t be afraid to mention it and seek help.
Unless of course again you are in my nation. I explained to the doctor I could not walk or get to food or water if they sent me home.
The doctor didn’t care and still sent me home.
They actually lied on their notes, after notes stated serious cramping and were checking for clots. They then proceeded to state it was my skin in their notes later just before sending me home.
I don’t think they realized I was going to read my file after I came close to death after their negligence.
So, here we go on with my blood clot story. I hope it helps you understand what can happen and how it can feel.
My leg went extremely pale, and instead of swelling my leg atrophied and contracted, went cold. I do believe that’s when my clots got so big they were blocking the blood flow in my leg entirely.
I ended up growing new vessels in my body that were seen in the CT-scan. That is our bodies way of trying to prevent blood from stopping its flow.
I have a new hepatic artery and several new blood vessel branches throughout my body.
You bet I read my CT-scan and read my medical files.
So here we go, here is my experience from beginning to end…
Like a lot of medical articles I had cramps in my leg. One in my calve, one in my thigh. Both were very deep inside. I was walking to my car.
I thought to myself, “isn’t this a sign of a blood clot?”
I thought of going to the ER. Then I remembered how doctors are here where I am, and told myself that they would just laugh me out of the ER room and send me home in a medical crisis as usual.
Both cramps went away quite quickly. They were not the type that were debilitating.
I then second guessed myself.
If this happens to you and you live in a place you have to pay for ER visits, you can call your family doctor and get their opinion.
Where I am, I just don’t trust the ER’s, so I suggest you don’t take my approach of putting of until it is a life or death situation.
Am I saying run to the ER every time you have a cramp?
Not necessarily. You can contact a family doctor and have something called a D-dimer done before anything turns into a life or death situation.
If they catch it before it turns into a life threatening situation, you may be able to receive blood thinners without surgery, depending where those clots are and how big they are.
It can save your life if it is a first clot. Second clots may not always be caught by doing a D-dimer I have heard.
So anyways, a few days later my leg kept feeling what I would call woozy. Almost like nasuea in my leg. I felt like it got weak and warm in waves.
It would come and go.
I wanted to go to my doctors office, so was hoping I would feel better sooner than later, not knowing what was going on.
I have no help where I am to pack me up along with my small child to get to doctors when I need.
At this point, I totally forgot about the cramps while walking to my car.
Call it massive stress. Call it stupid. Call it what you will.
But I am a mom, and I ended up writing the cramps off since they went away so fast. I didn’t know they were related.
Now you may think I was an idiot, however the doctors here to me are like butchers. So I was trying to avoid more trauma than anything was worth.
I also have autoimmune and was not sure this symptom was related, and so far all doctors tell me it is a previous diagnosis, and that I need to go home and work out.
They say my thyroid causes all the problems. Along with other health issues, not related in anyway.
So because they have trained me they don’t care about their patients, I was trying to avoid them.
Although I love my GP and am grateful for her, not all are equal to her.
As time progressed, I felt weaker and weaker. I also had a bartholin cyst just before all my leg weakness began. I was extremely uncomfortable to say the least.
Or so I thought… (Just wait until you hear what is really was!)
I was so uncomfortable and in so much pain by that point. I went to the ER and the doctor was not interested in doing an ultrasound.
I was in more pain that a standard bartholin cyst. Believe me they are painful!
I had one many years ago because I used girly deodorant for a trip, and I never used deodorant for that purpose again, and I never had one since.
I asked the doctor if she was going to ultrasound it. She was not interested whatsoever.
She literally shook her head and said no as if it was completely unnecessary.
Her notes stated the breathing I was doing because of the severe pain.
You’d think she would just order an ultrasound for the extra lumps that I found in my vaginal walls while trying to get rid of the cyst myself.
I get it!
Bartholin cysts are a non emergency unless infected. But as a woman I know large lumps in vaginal walls are not standard. I also know those with intense pain are also not normal.
She told me my gynecologist could look at it later that week as I had an appointment already.
As I was walking to the car my hips began to grind intensely. I had to keep stopping. I called my little boy back several times as I could not keep up.
I was again afraid to go back to the ER.
I just left seconds ago. No one really gives a crap about anyone but themselves here, and the doctors are useless.
So I kept going and figured I’d get to my GP, or that the gynecologist would figure it out at my next appointment.
If that doctor would have done an ultrasound on my request of knowing this pain and the lumps I had were not normal and too much pain I could have avoided a massive embolectomy.
Sure enough at the gynecologist I had an ulcer starting again. (Ulcers can be a symptom of Bechet’s.)
She saw my ulcer and was the fourth doctor to tell me these ulcers are NOT herpes.
She believed it looked like a bechets ulcer as she remembered the images from med school.
She was also not going to remove the bartholin cyst, as it was not infected.
While I was there and as I was leaving, my leg went white and my toe had a purple blotch. My hips were grinding again on the way to my car.
The Gynecologist thought it was only swollen lymph nodes.
How can anyone think t was swollen lymph nodes if there is no infection?
Now what am I supposed to do at that point?
I was getting extremely frustrated. And no, I did not go back to the ER. And things were getting worse with really bad hospitals.
I ended up not getting better and not getting to my GP. However, if I could have got to her, I know for a fact she would have figured in out immediately, unlike everybody else.
I ended up wanting to do some chores around the house the next day. I thought I would be better.
As I started, I ended up having the weirdest tightening feeling in my leg. It kept getting worse. Until I ended up stretched out on floor howling in pain.
I could not bend my leg the pressure and pain was unbearable.
My little boy ended up helping me call the ambulance. The EMT’s notes stated vascular. And while in the ambulance he told me he thought is twas so serious that he was very worried about me.
And for that ER visit you can read the article I linked above. Do you really blame me for not going to the ER and being afraid rot do so at this point?
It took one more ER visit to a different hospital and being ignored in a bed by them as unimportant all night in order to get care.
It wasn’t until the CT-scan doctor woke me up in a panic telling me they were transferring me via ambulance to yet another hospital where a surgeon was waiting for me.
I ended up having a massive embolectomy. I was very lucky I had a great vascular surgeon. She saved my life. And she did not abandon me nor harm me like so many doctors before her.
They really should not have ignored me all night as unimportant before the CT-scan. But they did.
Those first cramps I had were indeed blood clots.
And if I could tell you anything I would say… Maybe cramps that are short lived are not something to rush to an ER for.
But mine were, and maybe yours are. You never know.
But at the very least go to your family doctor if you are not having the weakness. They can do something called a D-dimer as I mentioned before.
If it is a first blood clot they can use this to detect them.
Usually they will just give you a CT-can after your first clot as they are not reliable for subsequent clots I learned.
But you can save your life if you have a cramp and your GP requests blood work.
I am not in a normal situation in a country where I can count on most physicians. I am in a horrible situation right now.
If I was in the USA this would have been highly unlikely to happen to me I believe. At least in the severity of the abuse I went through in the ER where they forced me to walk with all of my blood clots.
But you know yourself better than anyone.
And if you have any weakness or woozy coming and going with those cramps, I would suggest you go to an ER immediately and scrap going to the GP.
Even if you are the tough guy or tough girl type to wait and see.
Blood clots can kill tough guys and tough momma’s in a moment.
I had over a dozen blood clots in my arteries. Some of them were full occlusions.
I had about four full occlusions, and many blood clots throughout my pelvis, and through out both legs, and a large one I did not feel in my stomach aorta. The one in my stomach aorta broke off.
I am lucky I had full occlusions because that broken one could have escaped and went back to my heart. Or it could have broken my stomach aorta itself and I could have died a painful death bleeding out, leaving my child motherless.
And that bartholin cyst? Was not a bartholin cyst. Those lumps I felt in my girly bits?
Those were blood clots and the bartholin cyst was gone immediately after surgery. My gland was blocked by the size of my blood clots.
If you have the financial resources I would suggest everyone check their genetic predisposition for blood clots.
I have since found out I have protein S deficiency.
One of several genetic blood clotting disorders. Some other factors that cause blood clotting are factor V Leiden, and protein c deficiency.
Maybe one day genetic testing will be routine, and so cost effective we can know exactly what our health risks are from the day we are born.
If you found this article helpful, go ahead and leave a comment below. I hope I could help someone searching for information on this topic.
If you would like to donate to help me in my lawsuit so I can afford the fees for the expert physician please email me in my contact page.
I found lawyer and the only cost I need to pay until lawsuit is finished is expert physician. The expert only cost equivalent to $5000 US. However when you have been redered disabled it is difficult to work.
I do hope to get the care I need and the diagnosis’s I need to get back home and to work.
Suing will allow me to go back to the USA for care, and head back to central America where I made full time home before all this happened to me.
I will never step foot in this nation again once I escape. Not even for a funeral of a relative would bring me back in case I got stuck again. It’s that bad!